Below is the post from Www.caringbridge.org about bravelittlegabe - our friends son that's to have brain surgery in a few weeks. Please read the recent post - you can find him at the link above - they need prayers as well.
Thanks
Gail
I haven’t written because I still don’t know exactly what we’re doing. Literally an hour after sending my previous caringbridge I received a call from a world known Chiari specialist in Chicago. I’ve had some reservations about the surgery and sent him a quick e-mail asking some questions. He responded immediately and validated some of my concerns. He invited us to Chicago to get a true opinion from him in regards to whether or not we should move forward with surgery, his thoughts about the progression in the brain disease and to have his hematologist review Gabriel’s entire history to possibly have an idea of the unknown blood condition . So, this has thrown us through a whirlwind. Although the last possible thing we feel like doing is making this trip and arranging it… we both feel strongly that it must be done before the brain surgery.
The surgery is still scheduled for March 21st. We may have to move it back a week and maybe two. Over the last two weeks we have seen some progression in head and leg pain. We believe some of the nerves in his right leg have started to become damaged. We do not want this to worsen so we are 95% sure we will move forward with surgery unless the Chicago expert has a good enough reason not to recommend surgery. So, surgery is still on but the date and place are up in the air at this time. As soon as I get a Chicago date and a surgery date I will let you know.
Gabriel is having his #31 transfusion tomorrow. Pray that God covers him with peace and strength. Pray for a good ferritin (iron) level. Pray his nausea subsides (from medication) and the head and leg pain do not worsen. He will be starting his day at the clinic and then will be on the inpatient floor for the majority of the day.
Will keep you posted…
Rebekah
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