Light

Well, it didn't get us far, but we were finally successful in using a pen and paper to communicate, and the first word was light, as in turn on the damn light! Unfortunately, once we got that, we couldn't get any more because it looked liked scribbles. He was really PO'd at the nurse because he was kind of dozing and she just pries open his eye to do his eye drops and wonders why he squirms! He wanted to communicate something but we just couldn't get it.

He was pretty lively for a while tonight, but the attempt to write wore him out. It's pretty difficult because he's trying to write with an oven mit on his hand (that's what I call it anyway). His all wrapped up because there's so much extra fluid in his arms it's just leaking right out. Hopefully soon they'll be able to take that off and he'll be able to write or get the ventilator off so he can talk. I told him he's doing a heck of a lot better than Saturday morning when he was actually dead for 30 seconds! He noded in agreement, and his hopefully settled down for the night.

We'll try the writing routine again tomorrow, but we'll see how far it goes.

It's really amazing how far he's come, and we'll have to see where he goes from here. The other good things about today were that he's getting some food, his sugar was 159 when I was there, and his pulse was down to 90 beats per minute. It was usually about 120 for most of the weekend, so 90 means his heart is getting a bit of a break after the dialysis wicked off a lot of extra fluid.

Keep sending us your positive thoughts and prayers as it really seems to be helping.